ATA would like to draw your attention to a survey sponsored by Hyperacusis Research Ltd., a non-profit organization dedicated to better understanding hyperacusis by funding biomedical research. Many people with tinnitus also have hyperacusis, an over-sensitivity to every day ordinary sounds. Researchers who are working on tinnitus are also interested in hyperacusis, and vice versa, because there may be a common underlying mechanism contributing to the onset and persistence of both conditions.
ATA invites its members and supporters with hyperacusis to take part in this survey that will help researchers better understand what it is like to experience this condition. The survey was developed in conjunction with Sanford Research in Sioux Falls, S.D., a nonprofit research institution that runs the Coordination of Rare Diseases at Sanford (CoRDS) Registry. Sanford Research has a safe and secure patient registry for all rare diseases.
The Sanford CoRDS survey process will consist of the following steps:
1. Complete your initial screening form by clicking this link. In the Diagnosis section, enter “hyperacusis” in the box for your “Rare Disease Diagnosis.”
2. Sanford CoRDS personnel will send you your login information via email for their secure web portal.
3. Utilize your new login information to take the survey. The survey will take approximately one hour to complete and can be completed in multiple sessions. Gathering your personal medical files, especially any audiometric test results, will enhance your ability to complete all of the survey in a timely manner.
Thank you in advance for your participation.